Sara

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54-year-old motorcycle riding, symphonic percussionist, violin student, church staff vocal musician, part-time paralegal/proofreader — but not all at the same time — diagnosed with Clear Cell Carcinoma of the Ovary in October 2013 following total abdominal hysterectomy to remove cantaloupe-sized ovarian tumor.
Shortly before the big hair shave-down, I visited my local Miles Perret Cancer Center and was given a couple of hats, turban/beanie-type coverings, and a wig. The wig wasn’t quite me, but it was the closest thing to me they had.

I’ve never dreaded or been freaked out about the whole losing-the-hair ordeal. If fact, it really has been a blessing in disguise. These last two weeks, as I near the end of chemo and the cumulative effects have hit me hard, I have wondered, “How in the heck would I have ever been able to take care of hair, when I can barely stand long enough to brush my teeth?!”

We had an unusually cold winter here in Cajun Country this year. I had placed my new little around-the-house head coverings in one of those clear storage box-type containers. One evening, I took one of the two ruffled covers and put it on. Wow, I thought. This is really cute! The ruffles make me feel feminine, and the little tail that comes down in the back makes me feel like I have hair.

Curious, I pulled it off to look at the tag to see who the maker was. ChemoBeanies. Hmmm. That was a name I was not familiar with. So off to the computer I went and found their website. I was beyond excited to learn the stories of Angelle and Danielle. Watching the videos and learning that such inspiration and love and devotion came from right here in Louisiana made me proud!

I instantly ordered two more ChemoBeanies. When I received my order, it came with the most beautifully handwritten note from Danielle and three additional ChemoBeanies included!

My ChemoBeanies very quickly became my go-to head covering every day. So easy.So comfortable. So cute! One of the oncology nurses andmy oncologist recognized them asChemoBeanies and knew part of the history of how they came about. I enthusiastically enlightened them on even more details.

All the cutesy little scarves that I purchased way too many of before losing my hair quickly became relegated to the back of my closet. They were much too difficult to fiddle with, especially when one of my ChemoBeanies looks so much better and works beautifully under any hat, if I so choose.

Best thing about having no hair when you ride a motorcycle: No more helmet hair!! Seriously‚Ķthat has always been such a major hassle, especially in the summer. I’ve tried all kinds of remedies for trying to look decent after I remove my helmet. Nothing had worked. That problem is forever solved! I seriously now plan to keep my hair super-duper short, and my ChemoBeanies are going to be a part of my life forever! I’ll keep the one wig that I got later on from TLC that actually looks good on me for special occasions, but the summertime hassle of what to do with hot, sweaty hair — no longer a problem! I am now spreading the word on women motorcycle forums when ladies post the age-old question of how to deal with helmet-hair.

I could not be more proud of these ladies if they were my own sisters. In a way, they are! They have cheered me up on Facebook when I’ve been down and sent me beautiful words of encouragement. And when I got a package in the mail recently with a new ChemoBeanie and a note explaining that it is a new style named Sara — after me! — well, words cannot express how proud I am of this!! A picture of it immediately went up on my Facebook page.

I am blessed to have found ChemoBeanies, and the world is blessed to have these amazing ladies in it!


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